Muscular Dystrophy Association (MDA)

161 North Clark Street
Suite 3550
Chicago, IL

Provides information and support, clinical research, and medical equipment for individuals with muscular dystrophy, ALS, and other muscle-debilitating diseases. Offers summer camps for children, a peer support network and equipment resources.

National Organization for Rare Disorders (NORD)

1900 Crown Colony Drive
Suite 310
Quincy, MA

Provides patient advocacy for individuals with rare diseases and the organizations that serve them. Committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and patient services.